Friday, November 2, 2012

Times Have Changed

My daughter with Down Syndrome is 18 years old. She'll turn 19 next month. When she was a baby, I went to the internet in search of information, resources, and support for the challenges I knew my wife and I would face in raising a child with special needs. Eighteen years ago there wasn't a whole lot on the web about Down Syndrome. I could count on one hand the number of sites dedicated to the condition. I did find a very helpful list server that I subscribed to, and it proved to be an immense source of encouragement and support. In addition, Down Syndrome itself was rarely mentioned in the news.

Fast forward to 2012. There are countless sites on the web dedicated to providing resources for parents of children with Down Syndrome, as well as the many personal blogs where people share their experiences and stories of raising their child with Down Syndrome. I created a filter in Google News that will post in my reader any article with "Down Syndrome" in the headline. Every day there are anywhere from 5-20 articles that show up. There is so much information on Down Syndrome available today, and that's a good thing.


One other change I have seen is the way social media (Facebook, Twitter, Instagram, etc.) plays a large role in educating people about Down Syndrome (and disabilities in general). Again, people who have someone in their lives with Down Syndrome are quick to share their stories, photos, and videos, helping to dispel long-standing myths and stereotypes about the condition. I have also seen waves of protest and movements that encourage my heart, such as the campaign to "End The Word" (i.e. use of the "R word"), drawing attention to how hurtful it is to those living with a disability. The recent backlash against Ann Coulter's use of the R word in a tweet she posted referring to President Obama is a good example. Hopefully more and more people will speak out about the need to treat all people with respect.

November 1-7 is National Down Syndrome Awareness Week in Canada. I would encourage you to take the time to seek out information about Down Syndrome and educate yourself about this common, yet often misunderstood genetic condition. Better yet, if you know of someone with Down Syndrome, commit yourself to spending time with them, getting to know them.

Times have changed. Perhaps a new friend with Down Syndrome will bring some positive change in your own life as well.